Thank you Pete, for having Tamara on & letting her speak about it. Thank you Tamara for being such a go getter. I was on a higher dose years ago(close to what you're or were on) & I was finally able to function pretty normally. Yes I still had pain but it was a lot easier to push through the really bad pain & to be able to move around & do things I needed to do. & I wasn't "high" in the least either. I could actually sit & think & concentrate on the higher dose, that I hadn't been able to do for many years being in SOO much pain before getting on the pain meds. However, with the such drastic cuts/drops I'm practically back to being bed ridden again. Sooo depressing. But thank you SOO much for fighting for this. However, I'm in a different state & hope they will follow. I tried fighting as much as I could while being tapered. But getting down SO low I just couldn't do any more.
What about acute pain post surgery/ trauma . The no pain act which is horrific and needs to be changed get rid of altogether. Because again their trying to push a 1 size fits all treatment / meds instead of individualized pt focus care which is so important .
number 1 the pt / dr relationship suffers ( which has been destroyed because of the CDC guidelines.) # 2 because we all respond to pain , to meds and treatments for pain differently #3 we all metabolize meds differently and # 4 we all have different DNA amd chemical responses to meds and treatments .
. That paying incentives to doctors to not prescribe opioids post surgeries / post trauma is wrong . I don't believe anyone should be paid incentives to use or not too use a specific med or treatment period. Because in the end the pt suffers and is the denied the right for different
options for medical treatment ,/ meds . Their denied their right to choose what they feel is best for them , and what works best for them with discussion between pt and doctor . We need to address this also. Also did anyone ask these legislators, MEDICAL boards or DEA what is their definition of " over prescribing " was or show you what law states what would be considered " over prescribing: I want to know , since as far as I know their is no laws or definitions on what is considered "over prescribing " I'm sorry , but most is based on personal opinions rather then on any definitions or laws because their is none . Their is mo laws set by the FDA whose job it is not the CDC.
Also id like too know why the .the FDA has allowed the CDC to continue with these very biased risk based guidelines. Also why these guidelines
have been based soley on risks . Why their is no brnefits of opukds in these guidelines . While instead balancing out these guidelines with both risks and benefits . The benefits of opioids being providing quality of life abd tolerable pain . As many can agree the benefits of a quality if life and tolerable pain outway any possible risks their might be. As most who take responsibly as prescribed are not having and issues or risks. Also why is FDA SILENT in all this . Why human rights are being ignored , Why thoe who are anti opioid , DEA / DOJ , LEGISLATORS , CDC . ect. say theirs no proof that FDA approved opioids work . Yet I guarantee that if you asked the millions that must take these meds daaily can agree the benefits are having a quality of life and when on correct types of opioid pain meds and doses having tolerable pain relieve that then provides a quality of life that I and millions like me can agree they are beneficial and they do work . So right here is your dam proof that these FDA approved opioids do work . We don't need no dam study we are proof. We are the ones telling you they are beneficial of course nothing will ever make us pain free unless their becomes a cure for our chronic illnesses causing Debilitating intractable / chronic pain . So far this is not happening so atleast let us have our tolerable pain relief and a quality of life the best we can right now . So for many they can continue to work and provide for their families. For others like me where work is no longer an option atleast let us enjoy abd have quality time with our grandkids , spouse, our children
, our famlies and friends . Atleast allow me the right to this Quality of life so I may be able to get oob and not be bedridden and exist because that is not living . , that I maybe be able to shower , get dressed and take care of my home . These are the quality of life that I am able too do because of FDA approved opioid pain meds. Yes I can function when on the right effective opioids and doses , I did function on the right opioid and doses for my particular illnesses and intractable debilitating chronic pain . Prior to 2016 guidelines I had that quality of life , I had tolerable pain relief for 15 of the 20 + years I'm suffering. Once the guidelines came out in 2016 I was immediately forced tapered to ineffective levels. Then I had those meds completely taken away . YES I was put on alternative other opioid and different way lower doses which the Dr tried to say was equivalent it was nowhere near equivalent and my hell began again , along with my decreased quality of life . My suffering began again. I did eventually have to find a different doctor , but I'm still not back on anywhere near what was effective or what I need for the multiple debilitating nerve pain illnesses I suffer with . I suffer from 3 of the worst and most painful chronic illnesses you can have CRPS ( RSD) , fibromyalgia and small nerve multifocal neuropathy add in severe osteoarthritis DDD , DJD , sciatica from bulging disc's L4 TO L5 and S1 NON OPERATIVE .hx of avascular necrosis bilat hips ( hx of 6 hip surgeries 3 on each also left knee ACL / MCL and arthroscopic surgery x 3with residual chronic pain in all three areas ) yet I was ignored then tapered anyway. I said tapering me simply won't work but I attempted because I had no choice he was gonna do it whether I agreed or not . The amount of hell and suffering I've gone through since those guidelines came out is an outrage and sad and needs to stop . The guidelines need to be revoked completely or redone by those who are not biased nor anti opioid . Those who are knowledgeable in the treatment of pain period and those who actually suffer from the debilitating illness intractable / chronic pain , advocates who understand the suffering and how these meds help millions lead somewhat normal lives , allows quality of life and tolerable pain ( never pain free just tolerable ) focus on the benefits just as much as risks because all meds have risks and potential for death even otc Tylenol and ibuprofen , even stomach pills and couch medications ect. So we're being punished stop punishing is who have done nothing wrong 😭😭😔
Thank you Pete, for having Tamara on & letting her speak about it. Thank you Tamara for being such a go getter. I was on a higher dose years ago(close to what you're or were on) & I was finally able to function pretty normally. Yes I still had pain but it was a lot easier to push through the really bad pain & to be able to move around & do things I needed to do. & I wasn't "high" in the least either. I could actually sit & think & concentrate on the higher dose, that I hadn't been able to do for many years being in SOO much pain before getting on the pain meds. However, with the such drastic cuts/drops I'm practically back to being bed ridden again. Sooo depressing. But thank you SOO much for fighting for this. However, I'm in a different state & hope they will follow. I tried fighting as much as I could while being tapered. But getting down SO low I just couldn't do any more.
What about acute pain post surgery/ trauma . The no pain act which is horrific and needs to be changed get rid of altogether. Because again their trying to push a 1 size fits all treatment / meds instead of individualized pt focus care which is so important .
number 1 the pt / dr relationship suffers ( which has been destroyed because of the CDC guidelines.) # 2 because we all respond to pain , to meds and treatments for pain differently #3 we all metabolize meds differently and # 4 we all have different DNA amd chemical responses to meds and treatments .
. That paying incentives to doctors to not prescribe opioids post surgeries / post trauma is wrong . I don't believe anyone should be paid incentives to use or not too use a specific med or treatment period. Because in the end the pt suffers and is the denied the right for different
options for medical treatment ,/ meds . Their denied their right to choose what they feel is best for them , and what works best for them with discussion between pt and doctor . We need to address this also. Also did anyone ask these legislators, MEDICAL boards or DEA what is their definition of " over prescribing " was or show you what law states what would be considered " over prescribing: I want to know , since as far as I know their is no laws or definitions on what is considered "over prescribing " I'm sorry , but most is based on personal opinions rather then on any definitions or laws because their is none . Their is mo laws set by the FDA whose job it is not the CDC.
Also id like too know why the .the FDA has allowed the CDC to continue with these very biased risk based guidelines. Also why these guidelines
have been based soley on risks . Why their is no brnefits of opukds in these guidelines . While instead balancing out these guidelines with both risks and benefits . The benefits of opioids being providing quality of life abd tolerable pain . As many can agree the benefits of a quality if life and tolerable pain outway any possible risks their might be. As most who take responsibly as prescribed are not having and issues or risks. Also why is FDA SILENT in all this . Why human rights are being ignored , Why thoe who are anti opioid , DEA / DOJ , LEGISLATORS , CDC . ect. say theirs no proof that FDA approved opioids work . Yet I guarantee that if you asked the millions that must take these meds daaily can agree the benefits are having a quality of life and when on correct types of opioid pain meds and doses having tolerable pain relieve that then provides a quality of life that I and millions like me can agree they are beneficial and they do work . So right here is your dam proof that these FDA approved opioids do work . We don't need no dam study we are proof. We are the ones telling you they are beneficial of course nothing will ever make us pain free unless their becomes a cure for our chronic illnesses causing Debilitating intractable / chronic pain . So far this is not happening so atleast let us have our tolerable pain relief and a quality of life the best we can right now . So for many they can continue to work and provide for their families. For others like me where work is no longer an option atleast let us enjoy abd have quality time with our grandkids , spouse, our children
, our famlies and friends . Atleast allow me the right to this Quality of life so I may be able to get oob and not be bedridden and exist because that is not living . , that I maybe be able to shower , get dressed and take care of my home . These are the quality of life that I am able too do because of FDA approved opioid pain meds. Yes I can function when on the right effective opioids and doses , I did function on the right opioid and doses for my particular illnesses and intractable debilitating chronic pain . Prior to 2016 guidelines I had that quality of life , I had tolerable pain relief for 15 of the 20 + years I'm suffering. Once the guidelines came out in 2016 I was immediately forced tapered to ineffective levels. Then I had those meds completely taken away . YES I was put on alternative other opioid and different way lower doses which the Dr tried to say was equivalent it was nowhere near equivalent and my hell began again , along with my decreased quality of life . My suffering began again. I did eventually have to find a different doctor , but I'm still not back on anywhere near what was effective or what I need for the multiple debilitating nerve pain illnesses I suffer with . I suffer from 3 of the worst and most painful chronic illnesses you can have CRPS ( RSD) , fibromyalgia and small nerve multifocal neuropathy add in severe osteoarthritis DDD , DJD , sciatica from bulging disc's L4 TO L5 and S1 NON OPERATIVE .hx of avascular necrosis bilat hips ( hx of 6 hip surgeries 3 on each also left knee ACL / MCL and arthroscopic surgery x 3with residual chronic pain in all three areas ) yet I was ignored then tapered anyway. I said tapering me simply won't work but I attempted because I had no choice he was gonna do it whether I agreed or not . The amount of hell and suffering I've gone through since those guidelines came out is an outrage and sad and needs to stop . The guidelines need to be revoked completely or redone by those who are not biased nor anti opioid . Those who are knowledgeable in the treatment of pain period and those who actually suffer from the debilitating illness intractable / chronic pain , advocates who understand the suffering and how these meds help millions lead somewhat normal lives , allows quality of life and tolerable pain ( never pain free just tolerable ) focus on the benefits just as much as risks because all meds have risks and potential for death even otc Tylenol and ibuprofen , even stomach pills and couch medications ect. So we're being punished stop punishing is who have done nothing wrong 😭😭😔